The stigmatisation of individuals is believed to have various negative consequences. In terms of health care, for example, it is frequently argued that stigma functions so as to impede help seeking behaviour – such as would be evident in the seeking of a diagnosis or form of treatment. The impact of stigma in impeding help seeking has also been observed in relation to many other conditions such as, STDs, HIV/AIDS, epilepsy, Huntington’s disease and even (though to a lesser degree) relatively common disorders such as diabetes.
As well as functioning as an impediment to diagnosis and treatment, it has also been argued that stigma can have negative effects on an individual’s sense of wellbeing and emotional stability. Attempts to measure or assess the extent to which stigmatisation is actually practiced or perceived have normally been undertaken by means of community surveys on attitudes and perceptions or reports concerning stigma. However, to our knowledge no-one has sought to assess the prevalence of stigma using unobtrusive methods and large data sets such as are proposed here.
The overall aim of the proposed study is to assess the perceived sigma, by comparing self-reported and objectively measured prevalence of a disease, specifically
Wright, D.M., Rosato, M. & O’Reilly, D. (2016) ‘Which long-term illnesses do patients find most limiting? A census-based cross-sectional study of 340,000 people’ Int J Public Health (2016). doi:10.1007/s00038-016-0929-2
Rosato, M., Tseliou, F., Wright, D.M. et al. Are volunteering and caregiving associated with suicide risk? A Census-based longitudinal study. BMC Psychiatry 19, 296 (2019) doi:10.1186/s12888-019-2255-8